Journal

Research updates, explainers, community reflections, and the occasional dispatch from the rare disease frontier.

Pixel-art scene with Ghibli warmth: Stanley in side profile, fully absorbed at a brass microscope in his lab at night — specimen slides on the bench, warm amber lamp light, shelves of books behind. The character who notices, looking closer
Rare Disease

Happy 4th — Thank a Rare Disease Patient

The enzymes digesting your Fourth-of-July cookout are winning rolls in a billion-year genetic dice game. Some people carry the rare rolls — here's why they belong at the table too.

rare-diseasegeneticsmetabolismindependence-daypatient-perspective
Lattice Protocol

The Paper Behind Lattice

Before Lattice Protocol could work, someone had to answer an awkward question: how do you trust that a GPU you don't control actually ran your model? That answer became my first paper.

lattice-protocolresearchgpu-verificationdecentralized-computearxiv
Community

What If DNA Could Sing?

Not the sound of the waves — the genetic symphony of the thousands of organisms living inside a coral reef. The World Genome Symphony is being built to make biodiversity something you can hear.

wgasymphonydata-sonificationednaart-sciencevenice-beach
DeSci

Who Owns the Data?

When a teenager sequences the DNA in her school garden, who owns what she finds? Most platforms never really answer. The World Genome Academy is being built to answer it in the architecture itself.

wgadata-sovereigntygovernancefair-caredescicitizen-science
Lattice Protocol

How I Built a Personal Brand Content Engine with aDNA

I needed a system that could produce on-brand content across six platforms without losing my voice. So I built one — using the same knowledge architecture I use for federated science.

adnacontent-infrastructureknowledge-architectureopen-sourcebuild-in-public
Education

The Invisible Web Under Your Feet

A single gram of soil contains tens of thousands of microbial species. We're putting the tools to map them in the hands of high school students.

wgacitizen-scienceednametagenomicseducationk12
Education

What DeepChem Taught Me About Mentorship

Over multiple Google Summer of Code cycles, I mentored more than ten PhD and postdoc fellows on projects from neural ODEs to molecular property prediction. Here's what I got wrong first.

deepchemmentorshipgsocopen-sourcedrug-discoveryeducation
Rare Disease

Why I Still Don't Know What Causes My Disease

After years of testing, imaging, and specialist visits, the honest answer is still 'we don't know.' Here's why that matters — and why it's not the end of the story.

rare-diseasediagnostic-odysseypatient-perspective
Community

Church for the Curious

Every Sunday at The KINN in Venice Beach, we hold what I call Church for the Curious. No prerequisites. No credentials required. Just show up with a question.

communityscience-sundaysvenice-beachopen-science
Education

Proteins Are Not What You Think They Are

You were taught that proteins are building blocks. They're actually self-folding electric motors, linguistic structures with syntax, and the most sophisticated nanotechnology ever produced.

protein-scienceeducationbiologylook-closer